Origin: The lucky spark was a chance encounter between former medical colleagues, Dr. Jay Schnitzer and Dr. Monica Bertagnolli, on an airplane in 2017. Bertagnolli was a preeminent cancer surgeon at Brigham and Women’s and was leading the American Society of Clinical Oncology (ASCO) and Alliance for Cancer Trials in Oncology (ACTO). Dr. Schnitzer, was Chief Technology Officer at MITRE, with a growing portfolio of health information technology research.
Drs. Bertagnolli and Schnitzer had been circling around how to achieve a Learning Health System, where caring for every patient enables learning from every patient. Every person with any disease should have access to high-quality care, and also will have the opportunity for their experience to help others in the future.
-Drs. Bertagnolli and Schnitzer had also been circling around one of the fundamental challenges to achieving a Learning Health System: Lack of a single standard for collecting and sharing patient data electronically. They organized the first clinical requirements team convened under the auspices of ASCO, co-chaired by Drs. Jim Chen and [NOTE - find name of other co-chair], and composed of respected experts from across the oncology space. The team's mandate was to agree on the first Use Cases (a narrow scope was important), and on a minimal set of data elements to address Use Case requirements. This data dictionary later seeded a new standard for cancer data: the <%= link_to("minimal Common Oncology Data Elements","https://confluence.hl7.org/display/COD/mCODE") %>.
+Drs. Bertagnolli and Schnitzer had also been circling around one of the fundamental challenges to achieving a Learning Health System: Lack of a single standard for collecting and sharing patient data electronically. They organized the first clinical requirements team convened under the auspices of ASCO, co-chaired by Drs. Jim Chen and Doug Blaney, and composed of respected experts from across the oncology space. The team's mandate was to agree on first Use Cases (a narrow scope was important), and on a minimal set of data elements to address Use Case requirements. This data dictionary later seeded a new standard for cancer data: the <%= link_to("minimal Common Oncology Data Elements","https://confluence.hl7.org/display/COD/mCODE") %>.